Little Rock resident and CF fighter, Terry Wright, has been chosen as a recipient of a 2020 Impact Grant by the Cystic Fibrosis (CF) Foundation.
Terry is the first person from Arkansas to receive this honor! The CF Foundation awards Impact Grants of up to $10,000 per year to individuals or organizations that empower the cystic fibrosis community. After his late CF diagnosis at the age of 54, Terry and his wife, Dr. Michele Wright, saw an opportunity to engage, educate, and raise awareness of the disease in the Black community.
According to the CF Foundation Patient Registry, approximately five percent of people with CF identify as Black, and are more likely to have rare mutations that cannot be treated with current modulators. He created Raising Cystic Fibrosis Engagement in the African American Community, a program expansion from the National Organization of African Americans with Cystic Fibrosis (NOAACF) that aims to connect and engage people with CF and their families in the African American community through online workshops, an expanding network of virtual support, and more.
Terry says of his work: “If I can help make a difference and positively impact the life of just one person living with cystic fibrosis, then my living, suffering, and CF journey will not be in vain.” Read the entire article here or Download the pdf to read later.
