See Us: Faces of Disparities in Cystic Fibrosis Care and Experience
Terry Wright was a panelist at the ResearchCon 2021, the CF Foundation’s annual virtual event for the CF community that is focused on science and research.
The focus of ResearchCon 2021 was “CF and the Whole Person,” and took place virtually on Thursday, April 15, and Saturday, April 17, 2021. Terry was a panelist around the subject, “Disparities in CF Care and Experience”, during the Session titled, “See Us: Faces of Disparities in CF Care and Experience” on Thursday, April 15, 2021.
This session is important for the CF community because disparities experienced by minoritized people with CF are widespread, but not well understood. This session summarized what we know and shined a light on the many questions still to be answered about the nature and consequences of disparities in CF care and research. This session was designed to create an opening and a safe space for those who feel minoritized to share their stories and suggest future research strategies.
The main objectives and things hoped to be learned from this session are to (1) Increase awareness and understanding of what we know – and what we don’t – about the disparities that exist across CF care and research; Demonstrate the impacts of disparities and inequities to life through storytelling; inspire people to add to the conversation by sharing their experiences; and Discuss and solicit ideas for fostering equity for all people with CF by establishing a foundation for future conversations and research.
Terry,
Thanks for your contributions to making our ResearchCon disparities session a success. It was a pleasure working with you and getting to know you. It was an honor to be part of a session that tackled some tough issues head on. There is so much work to be done to reduce disparities and to create a more inclusive CF community. Thank you and Michele.
Linda Brennan, MPH
Senior Director, Community Partnerships
Cystic Fibrosis Foundation
Bethesda Office
