CFF Tomorrow’s Leaders’
Terry Wright Speaks at the CFF Tomorrow’s Leaders’ 2021 CF Fighter Panel
Terry Wright was a featured speaker in the Cystic Fibrosis Foundation Tomorrow’s Leaders “CF 101: CF In Real Life” National virtual event, which took place February 16 – March 11, 2021.
The first of five learning tracks was scheduled for February-March and was “CF 101: CF In Real Life” and consisted of 4 sessions. On Thursday, February 25, 2021, Terry was one of four adults on the CF Fighter Panel who discussed their unique experiences with CF, including: life post-lung transplant, having a rare mutation, taking Trikafta, and being diagnosed later in life. As a panelist in this session, Terry shared his cystic fibrosis (CF) story as part of the topic, “Later in Life Diagnosis”.
As noted on the organization’s website, “This event was kicked off with the first Learning Track by exploring what life with cystic fibrosis looks like. Exploring perspectives of people with CF, family of people with CF, and CF researchers; attendees will gain a deeper understanding of how cystic fibrosis affects a variety of people across the country while providing materials to learn more at your own pace.”
Link to the video: https://www.wevideo.com/view/2062432820
Thank you so much for participating as a speaker for our second session of the National Tomorrow’s Leaders Learning Track, CF 101: Cystic Fibrosis in Real Life. There were 177 unique viewers in attendance, so there is definitely interest for this topic among our Tomorrow’s Leaders and community members. Engaging young professionals and bringing in new members to the CF community is important for our future and work and we can’t thank you enough for being a part of it.
Terry – Thank you for sharing your story of late diagnosis and racial biases that you’ve experienced related to your CF. I’m in awe of the work you continue to do with your organization NOAACF, to engage people with CF and their families in the African American community.
Thank you!
Julia Alpaio
Senior Manager, Volunteer Engagement
Cystic Fibrosis Foundation
